Just some pics from our hospital admits from April - May 2015..
Wednesday, June 10, 2015
I really haven't had the time to update from April until now. A lot has happened! Isaac had 2 hospital admits. One was for a possible infection (enterocolitis) due to a rectal impaction. But it ended up not being that! Thank God. It was a viral illness but he did also have an impaction. We battled constipation pretty badly for about 5 weeks. We had many, many visits to the surgeons office as well. Almost every other day it seemed like.
At one point, we had to bring senna and enemas on board to keep things moving along. Then I just felt like that was also bringing unwanted side effects like lots of stomach aches, cramps, misery. Our GI doctor had recommended a naturopath to us quite a few months ago and I finally decided to call and make the appointment. I mean afterall, what else could I do? It was definitely better than to keep him on the current regimen that was miserable for him.
We had a great appointment with the naturopath. He recommended some different supplements to try to rebuild the gut flora and to get things working properly. We have him on 2 different probiotics, L-Glutamine, and a FOS to feed the good bacteria. I will post the pictures of the supplements for visual aid and talk more about them in another post.
After about a couple days on the supps Isaac did a complete turn around. In a good way! Things became more regular for him. We have since weaned off the senna and not needed any harsh medical interventions. Which is a plus. The naturopath also recommended a no dairy diet. Which has been a little bit of an adjustment. But we already had been doing limited dairy. There are plenty of options for dairy free. Lots of yummy vegan cakes and cookies. I can't even tell the difference! And either can Isaac. Which is always a plus.
Summer has snuck up on us. We had to move unexpectedly because the house we were in, the owner decided to sell it. Which was a big bummer and has been adjustment for us because we downsized. We will be looking to buy a home in about 6 or so months. For now, I don't have to worry about mowing or maintaining a lawn ;) We also have a swimming pool and playground literally within steps of our door. It has been a busy time for us.
Hope everyone is doing well!
Friday, March 27, 2015
March 16th marked a year since Isaac had a hospital admittance. ONE YEAR. We have managed to stay out of the hospital for one year. I can't say it enough. He has had some ups and downs this past year but it hasn't been serious enough to warrant a hospital stay.
In fact, we just saw our surgeon 3 days ago and all was well on the exam. She told us after Isaac had his surgery that as he got older things would get easier. You just can never be sure with Hirschsprung's Disease so you learn to not count on certain things. But I do have hope. Especially with how well he has done recently.
Today I took him for a Birthday Cake Frappuccino from Starbucks to celebrate. His first drink like this ever ;)
Friday, February 27, 2015
Thursday, January 15, 2015
Over the past few weeks I have had a huge increase in contact about my blog regarding managing Hirschsprung's Disease naturally. I wanted to take some time to update everyone and post a part 2. So here I am! Over the past few months we have had a lot happen, not just medically, so I do need to do a recap of our 2014 year. I will get to that in the coming days. I hope :)
Second, is supplements. It is easiest to add all his supplements into his morning smoothie. This way I know he is getting them and it also makes it easier to hide them. Because sometimes kids just don't want to take them! :) So here is a picture.. Then I will discuss from left to right.
3rd bottle in is Core Olive Leaf and we do 8 drops
I think this about sums it up. It's really been trial and error for us. Nothing has come easy. Hirschsprung's parents know what I'm talking about. I hope maybe some of these things will be able to help your child. It's all about knowledge! :) And networking :) I have learned so much just by being on forums, groups, connecting with other HD parents.
Now I just have to add a blog about our holidays and recap 2014! That will come.. Hope everyone has had a great start to 2015!!