Friday, February 27, 2015

Rare Disease Day is February 28th.. #62

Rare Disease Day is February 28th.. SHOW YOUR SUPPORT!


1 comment:

  1. Hello Franco Family,

    We are sharing information about an upcoming Cincinnati Children’s Hospital Medical Center live online Q&A session for parents of children born with Hirschsprung Disease, and given your posts on the topic I thought you might be interested in attending. The Q&A will be held on June 10 from 7-8 p.m. EST.

    The Hirschprung team at Children’s will be represented by two panel experts who stand ready to answer a wide range of questions that you can ask live that evening. Dr. Jason S. Frischer, MD, director of the Peña Colorectal Center at Cincinnati Children’s and Lyndsey Jackson, RN, BSN, CPN will host the online session. If you’d like to “meet” Lyndsey in advance, you can read her recent blog post about Managing Expectations After Surgery For Hirschsprung Disease: http://chldrns.org/1R7xTZo

    The link below has for more information and an RSVP page where you can register for the live event. We hope to see you there! http://chldrns.org/1PIQ9FY

    Thank you,
    Laura K, an ambassador working on behalf of the Cincinnati Children’s Hospital Medical Center live event team

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