Well.. #54

Well the past 6 weeks or so have been pretty confusing. What we thought was some type of viral or bacterial GI infection seems to be some type of episodes. The reason I say that is, I can pin point other times this has happened this year which never mounted to being a full blown virus. No fever, no vomiting, no watery diarrhea. It has been soft mushy stool, intense stomach pains, and just this past few weeks mucus and blood.

We decided after seeing our surgeon that is NOT Hirschsprung's related. But it is GI related. So she suggested we meet with our GI dr right away. Which we did, on Wednesday. We had a pretty lengthy appointment. We discussed everything that has been going on and he felt we needed to take a look further into things. Which means having a Flex Sig and an upper GI study so he can see his small intestine and also his sigmoid colon. He will be looking at where this inflammation is coming from. The mucus and blood usually mean some type of inflammatory issue. He said it could be a wide range of things.. From a food intolerance, an autoimmune disease, IBS, or maybe even no cause behind it. There is a wide, wide range of things he said. He will take biopsies during the procedure. He is looking for specific things that will help with a diagnosis.

At first we had no time frame for these procedures because he wanted him to be in an "episode" so he could see what was actively going on. It's like how are you going to see the inflammation when it's resolved 2 weeks later? So we really didn't have a time frame for the testing. It could be next week, next month, or next year. But then today the symptoms started again and we believe he is in an episode.

His testing got fast tracked to this Monday. The 6th. Sunday is his 3rd birthday party and Wednesday the 8th is his actual 3rd birthday. I never ever figured we would be celebrating his birthday and dealing with these issues at the same time. But we are ready for some answers. I just pray it is nothing more than some type of food intolerance or even IBS would be ok. I just can't take another punch in the stomach with another diagnosis.

I have been having a lot of anxiety today thinking about Monday. I just don't even have the words for it. I am utterly speechless. Numb. Sad. Confused. Angry. And frustrated. I just keep praying that things will be ok and we breeze through this.

Please keep my baby in your prayers. That's all we ask for right now. I will update more this week and post a few pics from his birthday. ♡