The past couple weeks have been a bit rough. Isaac had an ER visit about 2 weeks ago because he was having abdominal pain, loud gastric noises, diarrhea, and just plainly uncomfortable. It was determined to be some type of viral stomach bug. Fast forward to today and he is not feeling 100% again. Not exactly sure what is going on. His stool was pretty formed which means he could be constipated. So we are treating accordingly. I really hope nothing is going on. For the first half of the day he laid on the floor and didn't want food or water. We had to give him an irrigation to figure out what was going on. The return was all clear saline so which means his immediate bowel was clear. Then about 20 minutes later he has a well formed large stool. But did give us the conformation he was constipated - higher up into his large intestine. Just by the texture and look of the stool. The irrigation definitely loosened things up, enough for it to come down. He started to perk up and even ate breakfast and drank his smoothie. But now we are back to laying on the ground and just looking kind of sad.
Hirschsprung's is so anxiety provoking and just so frustrating. Being a HD parent is so hard sometimes. I can't even explain it. You watch your child suffer and struggle and there is nothing you can do. I don't mean like well we just didn't do anything for him and let him suffer, we gave him an irrigation and took him to the chiropractor right away, I meant that I can't cure this disease. No one can. So there will probably be a lot more days like this. And it sucks. It sucks. We are constantly having to watch what he eats, making sure he has lots of fruits and veggies, pushing water, making sure his bowel moves regular. And sometimes it's just not enough. And then we end up in situations like this. It puts a lot of stress in our house because everything has to stop because of this disease. I had to watch my husband go to work because we need the money, which stressed both of us out, then I had to take Isaac out when he's not feeling well because I had to pay bills and go to the bank. Things that couldn't wait. Meanwhile, my house is not tidy, I have not planned dinner, and I haven't showered. People don't understand what's so hard about having a kid with a medical condition. Well read above and maybe you will understand. Everything stops when your child is having problems. We spent all morning on and off the phone with his surgeon.. That took up most of our morning. It's just never ending. I am not asking for sympathy, just some compassion. Sorry if I missed your bday or some big event in your life. Sorry if I don't call much or don't answer when you call. Things are just not good for us right now. Trust me, I wish we could share all these special moments with our friends and family, but we have an everyday battle for us. Much like today.. ♡
No comments:
Post a Comment